Bullying Leaves a Bad Taste: Strategies for kids and teens with food allergies – soon to be released!
Mangos for Max by Jessica St. Louis
The Bugabees: friends with food allergies by Amy Recob
Allergy-Free and Easy Cooking by Cybele Pascal
Don’t Kill the Birthday Girl by Sandra Beasley
The Food Allergy Experience by Ruchi Gupta and Denise Bunning
Recommendations from CDC to prevent allergic reactions at school
Food Free Birthday Celebration Policy Example
Daycare & Preschool Medical Care Plan Assistance
How your school can obtain free epinephrine
See Legal Section for 504 info
This week provides a wonderful opportunity for us to raise awareness about food allergies in Northeast Ohio. Check out the links below for way to continue to spread the word.
Turn it Teal – Teal lightings around the world
Sample Morning Announcements for Schools as adapted from FARE resources
FARE Food Allergy & Anaphylaxis Emergency Care Plan
Nut info for oral food challenges (free from cross contamination)
Please check with manufacturer to ensure safe for you or your child. The information on this website has not been verified by NEOFAN.
During NEOFAN’s Taste of Spring Event, supporter Amanda Liptak, LD RD provided us with wonderful information on how to make eating fun and nutritious while avoiding Top 8 Allergens. Below you can find a link to her presentation.
How to Make Eating Fun and Nutritious While Avoiding the Top 8 Allergens
Carolyn E. Ievers-Landis, Ph.D & Rebecca Hazen, Ph.D , Licensed Clinical Psychologists from the Division of Developmental/Behavioral Pediatrics & Psychology of Case Western Reserve University and Rainbow Babies & Children’s Hospital provide strategies to enhance life while navigating the world of food allergies.
Amy Przeworski, Ph.D an Assistant Professor at Case Western Reserve University and parent of a child with food allergies provides helpful information on stress and anxiety in children with food allergies.
Kaleo is offering free Auvi-Q
- Download the following form: https://www.auvi-q.com/pdf/Direct-Delivery-Service-Enrollment-Form-2.pdf
- Fill out patient section of the form.
- Then, have your child’s physician fill out the remainder and fax completed form.
- You must answer the phone call from 844-357-3968 in order to receive the shipment. Or, you may call that number yourself to expedite the process.
- If you have commercial insurance, you will then receive one Auvi-Q carton (2 auto-injectors) with $0 copay. In 30 days, your physician can write another prescription and you can get one more Auvi-Q carton (2 auto-injectors) also for $0 copay. Note: If you have no insurance and make less than $100,000, you are eligible for a patient assistance program and can call 844-357-3968.
Your school can obtain free epinephrine.
NEOFAN’s Medical Advisor
Leigh Ann Kerns, MD
Center for Pediatric Allergy
Cleveland Clinic
Teens for Teal Group Facilitator
Christopher A. Flessner, Ph.D.
Associate Professor, Dept. of Psychological Sciences
Director, Pediatric Anxiety and Allergy Research Clinic (PAARC)
Kent State University
Nutritionists/Dietitians
Nicole Lidyard RDN, LD
University Hospitals Cleveland Medial Center
Specialty Areas: Pediatric GI & Allergy (includes EoE and FPIES)
Phone/Appointment Line: (216) 844-1765
Sally Phillips MS, RD, LD, CDE
Akron Children’s HospitalSpecialty areas: Pediatric Nutrition (includes Food Allergies and EoE)
Department Phone/Appointment Number: (330) 543-0140
Direct line: (330) 543-8618
Licensed Clinical Psychologists
Rebecca Hazen, PhD
University Hospitals Cleveland Medical Center, Case Western Reserve University School of Medicine
Appointment Phone: (216) 844-3230
Carolyn Ievers-Landis, Ph.D
University Hospitals Cleveland Medical Center, Case Western Reserve University School of Medicine
Appointment Phone number: (216) 983-1281
Ohio Law allows school to stock and use epinephrine to treat anaphylaxis:
http://codes.ohio.gov/orc/3313.7110
http://codes.ohio.gov/orc/3313.7111
http://codes.ohio.gov/orc/3314.143
http://codes.ohio.gov/orc/3326.28OCR Section 3313.718 (2006)
Ohio Law for epinephrine at camp:
http://codes.ohio.gov/orc/5101.76
FARE’s Insider’s Guide to Eating Out by Joel Schaefer
The SafeFARE program by FARE offers tools that help create a safer dining experience
How to Make Eating Fun and Nutritious While Avoiding the Top 8 Allergens
The following resources have been helpful to NEOFAN members. Always check with your physician to ensure safety.