Helpful Information

FARE Food Allergy & Anaphylaxis Emergency Care Plan

Nut info for oral food challenges (free from cross contamination)

Please check with manufacturer to ensure safe for you or your child. The information on this website has not been verified by NEOFAN.

Nutrition

During NEOFAN’s Taste of Spring Event, supporter Amanda Liptak, LD RD provided us with wonderful information on how to make eating fun and nutritious while avoiding Top 8 Allergens.  Below you can find a link to her presentation.

How to Make Eating Fun and Nutritious While Avoiding the Top 8 Allergens

Psychology

Carolyn E. Ievers-Landis, Ph.D & Rebecca Hazen, Ph.D , Licensed Clinical Psychologists from the Division of Developmental/Behavioral Pediatrics & Psychology of Case Western Reserve University and Rainbow Babies & Children’s Hospital provide strategies to enhance life while navigating the world of food allergies.

Amy Przeworski, Ph.D an Assistant Professor at Case Western Reserve University and parent of a child with food allergies provides helpful information on stress and anxiety in children with food allergies.

Obtaining Epinephrine

Kaleo is offering free Auvi-Q 

  1. Download the following form: https://www.auvi-q.com/pdf/Direct-Delivery-Service-Enrollment-Form-2.pdf
  2. Fill out patient section of the form.
  3. Then, have your child’s physician fill out the remainder and fax completed form.
  4. You must answer the phone call from 844-357-3968 in order to receive the shipment. Or, you may call that number yourself to expedite the process.
  5. If you have commercial insurance, you will then receive one Auvi-Q carton (2 auto-injectors) with $0 copay.  In 30 days, your physician can write another prescription and you can get one more Auvi-Q carton (2 auto-injectors) also for $0 copay.   Note: If you have no insurance and make less than $100,000, you are eligible for a patient assistance program and can call 844-357-3968.

Your school can obtain free epinephrine.

Professional Resources

NEOFAN’s Medical Advisor

Leigh Ann Kerns, MD
Center for Pediatric Allergy
Cleveland Clinic

Teens for Teal Group Facilitator

Christopher A. Flessner, Ph.D.
Associate Professor, Dept. of Psychological Sciences
Director, Pediatric Anxiety and Allergy Research Clinic (PAARC)
Kent State University

Nutritionists/Dietitians

Nicole Lidyard RDN, LD
University Hospitals Cleveland Medial Center
Specialty Areas: Pediatric GI & Allergy (includes EoE and FPIES)
Phone/Appointment Line: (216) 844-1765

Sally Phillips MS, RD, LD, CDE
Akron Children’s HospitalSpecialty areas: Pediatric Nutrition (includes Food Allergies and EoE)
Department Phone/Appointment Number: (330) 543-0140
Direct line: (330) 543-8618

Licensed Clinical Psychologists 

Rebecca Hazen, PhD
University Hospitals Cleveland Medical Center, Case Western Reserve University School of Medicine
Appointment Phone: (216) 844-3230

Carolyn Ievers-Landis, Ph.D
University Hospitals Cleveland Medical Center, Case Western Reserve University School of Medicine
Appointment Phone number: (216) 983-1281

The following resources have been helpful to NEOFAN members. Always check with your physician to ensure safety.